6 days ago

Deep Dive: At Home in the Hospital

Growing up with cystic fibrosis meant growing up in and out of the hospital. In this episode I walk through what that life has actually looked like day to day — the setup ritual I do every single admission, how hospital food has evolved across thirty years of stays, the night nurses who will absolutely wake you up every two hours if you let them, and what it has meant to go through all of it first as a kid trying to kill time, then with Brenda by my side, and now as a father calling home every night to hear about what they ate for dinner while I was gone.

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